$60,073
Amount Raised
163
Gifts Received
Projects
Team Borenstein - Packard Center NYRR
By The Robert Packard Center
Greg Borenstein is running the 2026 NYC Marathon in honor of Morris Borenstein on behalf of the Robert Packard Center for ALS Research.
Greg Borenstein is running the 2026 NYC Marathon in honor of Morris Borenstein on behalf of the Robert Packard Center for ALS Research. The Robert Packard Center I will be running the NYC marathon for The Robert Packard Center for ALS Research in honor of my grandfather, Morris Borenstein. Morris was born and raised in Poland, but with the outbreak of World War II, was sent to a work camp. While aboard a train taking him to a concentration camp, Morris jumped off and escaped, then survived by hiding underground for the remainder of the war. After meeting my grandmother, who also survived the holocaust, they ultimately settled in New York City. It was a few years later, around 1954, that Morris was diagnosed with ALS.
Despite having been through all he had with the war, and being diagnosed with a terminal disease that generally only has a few years of life expectancy, Morris fought and lived with ALS for about 30 years, until his death in 1984. The sheer will and determination he lived his entire life with is awe inspiring. He battled every day with this disease for decades. I became involved with The Packard Center shortly after my graduation from Johns Hopkins in 2007. I am not in the medical field, but I do know that this disease, like all diseases, will only have breakthroughs in treatments and possibly cures by funding research. Some years ago, when The Packard Center mentioned they had been applying for charity spots for the NYC marathon, I held out hope they would gain admittance. Having lived almost my whole life around New York City, being an endurance athlete (very amateur!), a Hopkins alum and someone so connected to the disease, I was thrilled to learn this year they finally received several slots. It’s an honor to myself and my family to run for this cause, and a responsibility on my behalf to promote awareness and support to find a cure to this terrible disease.
81%
Funded
64
Donors
91
days
left
Team Carneal - Packard Center NYRR
By The Robert Packard Center
Tabb Carneal is running the 2026 NYC Marathon in honor of Duane Herbel on behalf of The Robert Packard Center for ALS Research at Johns Hopkins.
Tabb Carneal is running the 2026 NYC Marathon in honor of Duane Herbel on behalf of The Robert Packard Center for ALS Research at Johns Hopkins. The Robert Packard Center I'm running the 2026 NYC Marathon in honor of Duane Herbel on behalf of The Robert Packard Center for ALS Research at Johns Hopkins.
When I was young, Duane showed me kindness, humor, and John Waters (in that order). Duane worked in pediatric oncology and emergency medicine at Johns Hopkins Children’s Center, so I know he positively impacted many other lives too. This excerpt from a 2018 article published in Johns Hopkins Medicine’s News & Stories section captures Duane well: “I have always loved caring for children,” says Herbel. “Nursing skills are important, but in my opinion, the art of nursing is supporting children, parents, and the physicians and nurses who care for them.”
19%
Funded
10
Donors
90
days
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Team Lubin - Packard Center NYRR
By The Robert Packard Center
Kari Lubin is running the NYRR marathon in memory of her dad. Funds raised will go towards ALS Research at The Robert Packard Center
Kari Lubin is running the NYRR marathon in memory of her dad. Funds raised will go towards ALS Research at The Robert Packard Center The Robert Packard Center I am running the NYC marathon and fundraising for ALS research in honor of my dad, Peter Lubin. He participated in clinical trials with the Packard Center during his battle with ALS and the doctors and researchers there gave my family so much hope for a prolonged life for my dad and for an eventual cure. He sadly did not live to see the day when we find a cure for ALS, but I am honored to fundraise in his memory for an institution that is doing such great work toward that goal.
My dad was a runner and then a cyclist (and always a skier) and was my loudest cheerleader at the first marathon I ran. If he were still here, I have no doubt he would be keeping me company on the bike during my long runs.
For me, this is such a meaningful opportunity to do something I love that makes me feel close to my dad while also raising money for an organization dedicated to eradicating the disease that took his life too soon. In 2017, my dad participated in the Packard Center Fiesta 5k surrounded by family and friends and raised over $17,000 for ALS research. This time is a bigger race with a bigger fundraising goal - let’s see if we can raise $20,000 while I chase a 3:20 marathon!
33%
Funded
60
Donors
91
days
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Team Wright - Packard Center NYRR
By The Robert Packard Center
Jake Wright is running the NYRR marathon in memory of his grandmother. Funds raised will go towards ALS Research at The Robert Packard Center.
Jake Wright is running the NYRR marathon in memory of his grandmother. Funds raised will go towards ALS Research at The Robert Packard Center. The Robert Packard Center I am running for Team Packard in honor of my grandmother, who passed away in 2023 after battling ALS. Her experience opened my eyes to how complex and uncertain this disease can be not only in its diagnosis and prognosis, but in the many unanswered questions families face along the way.
As a nurse, I care for patients and families navigating similarly difficult circumstances, and I’ve seen firsthand how overwhelming a serious diagnosis can be. That’s why this cause is so important to me. While there is currently no cure for ALS, raising awareness and funding research can help reduce the uncertainty, improve care, and move us closer to treatments that slow or stop the progression of this disease altogether.
32%
Funded
29
Donors
91
days
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