Scrambler Therapy Fundraiser
Imagine putting your hands and feet in a vat of boiling cooking oil and leaving them there. Then, brutal electric-like shocks, head to toe, leaving you completely debilitated and home-bound. That describes the excruciating pain I have been suffering from. Hospital stays and countless blood and neurological tests later led to a diagnosis of Idiopathic Small Fiber Sensory Neuropathy. There is no treatment, and no drugs that stop the pain. In June, I found a 2023 New England Journal of Medicine report about "Scrambler Therapy" for chronic, unrelenting pain written by a Johns Hopkins oncologist using this therapy on cancer patients left with neurological pain from chemotherapy. Luckily Dr. Tom Smith took me on as his patient.
Scrambler Therapy, pioneered in Italy, administers electrical stimulation through the skin via electrodes placed in areas of the body above and below where chronic pain is felt. Generally hands and feet. The goal is to capture the nerve endings and replace signals from the area experiencing pain with signals coming from adjacent areas experiencing no pain, thus scrambling the signals sent to the brain. My first several treatments (there will be more) have helped me start to walk unaided, drive again and decrease my pain meds.
While Scrambler Therapy received FDA approval in 2009, most insurance companies and Medicare will not pay for it (mine is contributing.) Because of that, Johns Hopkins Sidney Kimmel Cancer Center has only one machine for hundreds of desperate patients. My goal is to raise $75,000 to buy another. Since I am already in the program, none of the money raised will benefit me, but it will help those waiting and suffering.
There's an old African proverb that says, "When you pray, move your feet." Well, my feet are moving again, and I pray that with your help, more patients suffering unimaginable, chronic pain will finally get some relief.
Thank you so much for any contribution, small or large, to this worthy case. Jennifer Johnson